The Center for Bioethics and Medical Humanities (CBMH UGM) on Wednesday (16/11) held a Raboan Discussion Forum with the theme of Ethics Problems in the Use of Social Media related to Health. The theme was delivered by the speaker Prof. Dra. Yayi Surya Prabandari Ph.D. Meanwhile, the discussion forum was led by dr. Wika Hartini MIH as moderator.

Prof. Yayi sees that social media is now increasingly being used by practitioners in the health sector. The use of social media is very diverse but in general social media is a platform so that users can connect and share with each other. Some examples of the use of social media include Blogs, Networking Sites, Media Sharing Sites, Wikis, and so on.

Social media has both positive and negative sides. A positive example of the use of social media in the health sector is to be able to disseminate health education. On the other hand, social media also has a negative side that has the potential to violate ethical principles.

According to Prof. Yayi, the use of social media needs to be based on careful consideration. The use of social media creates the potential for misuse of data by irresponsible third parties. Personally owned data that is distributed through social media is prone to be used by third parties without the permission of the data owner.

“When we have an account there are some things we share that can be used without permission. For example, for marketing activities,” said Prof. Yayi.

This can be overcome by reading in detail the terms and conditions when creating a social media account. So that users can understand social media policies in protecting user privacy.

Apart from privacy concerns, Prof. Yayi also presented ethical issues by professional health practitioners. With social media, doctors also have the opportunity to spread health education to the public. Prof. Yayi gave an example of a doctor on Instagram who made a post about the condition of his patient’s illness. According to Prof. Yes, these activities are allowed when they are intended for educational purposes. However, doctors must be aware that there are ethical guidelines that need to be observed because they involve the patient’s personal data.

Prof. Yayi explained that there need to be standards that doctors and health care providers can adhere to in the use of social media so that there are no violations in maintaining the confidentiality and privacy of patient data.

 

Full video can be accessed here

Wednesday (15/12), Center for Bioethics and Medical Humanities (CBMH FK-KMK UGM) held the weekly Raboan Discussion Forum. The topic raised this week is the Perspective of End-Stage Chronic Renal Failure Patients on Joint Decision Making When Starting Hemodialysis Therapy. The topic was delivered by dr. Ouve Rahadiani Permana, M.H.Kes., M.Sc. dr. Ouve is lecturer of the Faculty of Medicine, Universitas Swadaya Sunan Gunung Jati (UGJ) and Masters in Bioethics UGM alumni. Meanwhile, the moderator was dr. Nurul Aida Fathya, Sp.FM, M.Sc. She is lecturer of the Faculty of Medicine at Universitas Jendral Soedirman and Masters in Bioethics UGM alumni.

Hemodialysis therapy or also commonly known as dialysis has a significant impact on patients. Kidney failure patients who take this therapy are required to limit the consumption of food and fluids. In addition, patients also have less ability to perform a physical activity such as working. Patients also have an emotional impact during the therapy. This attracted the interest of dr. Ouve to do further study, considering the prevalence of patients with kidney failure is increasing every year.

Doctors have a role to provide a complete explanation of the patient’s disease and treatment options. This is also an important aspect of bioethics because it is a form of respect for patient autonomy. But in reality, there are still many patients who do not get complete information from doctors. Based on previous research, it was found that 70% of patients with chronic kidney failure still do not know well their disease.

In addition to doctors, the patient’s family also has an equally important role to support the patient’s treatment therapy. So that a joint decision between patients, families, and doctors becomes an alternative that can be done in determining the treatment that respects patient autonomy.

“Shared decision making can optimize patients and families to make choices.” said dr. Ouve.

Based on dr. Ouve findings, chronic kidney failure patients are having deficient information about their treatment choices. It caused patients for not having well understanding of their hemodialysis therapy. In her conclusion, dr. Ouve recommended better communication for doctors and chronic kidney failure patients because complete information is the basis for patient autonomy.

 

The full video can be accessed here

Center For Bioethics and Medical Humanities (CBMH UGM) held the annual Raboan Discussion Forum.  This week, Wednesday (01/12) the discussed topic is  Health Law Literacy. The topic was presented by Dr. dr. Muji Iswanty, S.H., M,H., Sp.KK.,M.Kes from Universitas Hassanudin. She is also the head Masyarakat Hukum Kesehatan Indonesia Sulawesi Selatan. The discussion was conducted by dr. Nasrun S.H., M.Sc as moderator.

Dr. Muji revealed that nowadays some doctors and health service provider doesn’t follow the four bioethics principal which is beneficience, non maleficience, autonomy, and justice. This occurences often led to legal dispute between patients and doctors or health care providers.

According to dr. Muji, doctors and patient should build a terapeutic relationship which is very important for both parties. To build healthy relationship between doctors and patient there should be a mutual understanding about both rights and obligations. Patients rights according to dr. Muji are healthcare services, rights for information, second opinion, privacy, and medical treatment consent. Meanwhile, patients ablogation are good intentions, giving information to doctor, to implement doctors advices and to be cooperative.

In another side, doctors and healtcare provides also had their rights and obligation. The obligation for doctors and healthcare are written in doctor’s oath and standard operating procedure. Meanwhile doctors and healthcare providers rights are the freedom to work, self privacy, and reward.

Bioethics principal and Health Policy thus can be concluded as very related. According to dr. Muji Health Law is part of the general law that regulates the behavior of every member of the community related to health services and is responsible for everything that can cause harm/death.

Laws related to health in Indonesia included Undang-Undang Praktik Kesehatan (UU Republik Indonesia No 29 tahun 2004), Undang-Undang Tenaga Kesehatan (UU Republik Indonesia No 36 tahun 2014), and Undang-Undang Rumah Sakit (UU Republik Indonesia No. 44 Tahun 2009).

It is very important for doctors and healthcare providers to understand this regulation because it is related to patient safety.

“This is our guideline that we need to know until we stop practicing,” said dr. Muji.

 

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Yogyakarta – Raboan Discussion Forum was again organized by the Center for Bioethics and Medical Humanity (CBMH UGM) on Wednesday (19/11). This weeks topic is  Ethical Issues in Healthcare Digital Marketing. CBMH UGM invited Dr. dr. Andreasta Meliala, DPH., M.Kes., MAS from the Center for Health Policy Management FK-KMK UGM. Meanwhile, the moderator  is Dr. Nur Azid Mahadinata.

In the past few years, the development of technology and the healthcare industry has grown very rapidly. This has resulted in new issues for health care providers one of them is Healthcare Marketing.

The Marketing practice in healthcare provider is becoming one of the topics that is increasingly being discussed by practitioners and researcher in the health and medical fields. Because, this challenges of industrialization and digitalization demand a balance between ethics and humanity.

 

Dr. dr. Andreasta explained that in the past advertising activities were unusual and unethical for a hospital. However, nowadays the term marketing is increasingly accepted and even becomes an important thing for the sustainability of the hospital. So that it brings disruption and also new challenges for the realization of the ethical principles that have been applied previously.

“Principles such as beneficence, fiduciary responsibility, respect for autonomy, non-maleficence have also disappeared, thus challenging the main ethical principle, namely human dignity,” said Dr. dr, Andreas.

One of the problems that often arise in Healthcare Marketing is the existence of excessive claims of a health product. Many health advertisements are found scattered among the public displaying research results that do not meet the rules of clinical research. For example, in advertisements targeting cancer patients.

“Because it is wrapped or used as a marketing strategy, the results have been blown up,” added Dr. Dr. Andreasta.

In his presentation, Dr. dr Andreasta also added some principles that can be applied by health care providers to promote a product. First, the information provided must be honest and balanced. Second, it is not allowed to exaggerate claims just for the sake of building perceptions. Third, providing data that can be accessed by all parties so that claims can be proven and accounted for. Fourth, ensure that the drugs given are appropriate for each group.

 

Watch the full video here