Digital Health Transformation Impact on Health and Inclusion: Some Moral Considerations [Raboan Discussion Forum]

Center for Bioethics and Medical Humanities held Raboan Discussion Forum on Wednesday (25/01). The weekly discussion forum raised topic Digital Health Transformation Impact on Health and Inclusion: Some Moral Considerations. The topic was presented by Abdul Rohman, PhD. and lead by moderator Erlin Erlina, PhD.

People with disabilities (PwD) have faced challenges accessing information related to the pandemic, including vaccination programs, indicating an inconsistent implementation of social inclusion principles in the pandemic response plans. In response, three organizations of PwD in Vietnam organized five online information sessions between late 2021 and early 2022 when major cities in Vietnam were on lockdown. During each session, medical experts shared pandemic and vaccination-related information with 209 participants. After the session, participants were asked to rate their confidence in COVID-19 vaccines, share what information they needed, what information sources they used, and how to improve the inclusiveness of vaccination programs. The study found that PwD in Vietnam are willing to take vaccines, but making a range of information sources accessible to them can help communicate the side effects of the vaccines to their specific health conditions. It is important to consistently implement disability rights in vaccination programs as part of the pandemic response plans to become more inclusive. The study recommends strengthening the capacity of organizations of PwD to produce accessible information independently to better protect them in future pandemics.

 

Ethical Perspective on Artificial Womb [Raboan Discussion Forum]

On Wednesday (18/1), the Center for Medical Bioethics and Humanities held the Raboan Discussion Forum. The topic discussed was the Ethical Perspective on Artificial Womb. The speaker for this discussion was Dr. Theza Elizianno Andrew Pellondo’u, Sp.KF, and it was moderated by Dr. Tiea Khatija.

DNA & RNA are chemical molecules that have the property of self-replication. Cells have the inherent instinct to reproduce themselves through mitosis or meiosis.

Effects of science and technology developments in medicine:

  • Improved accuracy of MRI and CT scans
  • CSISPR
  • 3d printing

The development of science and technology in reproduction:

  • Section Caesarea
  • IVF
  • Sperm/ovum/embryo storage
  • Surrogate mother
  • Baby Incubator
  • Clone
  • Stem Cells

IVF/IVF has helped many couples who have difficulty having children. Artificial uterus is a tool to accommodate the womb outside the uterus so that it can develop normally.

The Ways of Artificial Womb working:

  • The artificial womb is placed in a vessel filled with circulating artificial amniotic fluid.
  • The umbilical cord is connected to a tube to supply oxygen and nutrients while removing carbon dioxide and other metabolic waste.
  • The hose is connected to a blood pump and filtration device.

Limitations of the artificial uterus: Currently, it is only feasible for fetuses with a strong heart capable of pumping blood throughout the body and blood vessels that are large enough to accommodate a catheter.

Advantages of an artificial uterus:

  • Reduce infant mortality caused by premature birth.
  • Reduce abortion rates for maternal indications.
  • Eliminate the practice of surrogate motherhood.
  • Anyone can have biological offspring, for example, women with uterine problems or gay partners.
  • Embryo development can be directly observed.

Disadvantages of Artificial Uterus:

  • Depends on electricity, filters, artificial materials.
  • Limited
  • Expensive

Ethical Aspect :

  • Respect for Autonomy: Embryo transfers must have the patient’s consent and respect the patient’s rights.
  • Justice: Not everyone can access the health procedures/measures they need. Patients are free to determine their rights to have or not have children.
  • Beneficence: Protecting human life and prioritizing patient health.
  • Non-maleficence: It will be fulfilled if it is practiced perfectly. Doctors need to be careful when applying new, untested methods.

Ethical Issue in Assessment [Raboan Discussion Forum]

Center for Bioethics and Medical Humanities held Raboan Discussion Forum on Wednesday (11/01). The weekly discussion forum raised topic Ethical Issue in Assesment. The topic was presented by dr. Yoyo Suhoyo, M.Med.Ed, PhD. and lead by moderator dr. Galuh Dyah Fatmala.

Ethical behavior in assessment requires individuals to act based on their obligation to protect the rights of those affected by the evaluation, treat them with respect, and incorporate principles of fairness. The first principle of assessment is to do no harm, meaning that assessments should accurately reflect mastery of content, be administered fairly, and treated confidentially to avoid score pollution. Score pollution is any practice that artificially improves test performance without increasing actual mastery of content, resulting in scores that do not represent actual student achievement.

Assessment principles include validity, which ensures that the assessment measures what it is intended to measure, reproducibility, which ensures consistency in measurement, equivalence, which ensures that different forms of the assessment measure the same construct, feasibility, which ensures that the assessment can be practically administered, educational effect, which considers the impact of assessment on learning, and catalytic effect, which considers the impact of assessment on instruction. Acceptability, which considers the stakeholders’ perceptions of the assessment, is also a crucial principle.

In summary, ethical behavior in assessment requires individuals to protect the rights of those affected by the evaluation, avoid score pollution, and incorporate principles of fairness. Assessment principles such as validity, reproducibility, equivalence, feasibility, educational effect, catalytic effect, and acceptability ensure that assessments accurately measure what they intend to measure, are administered consistently and fairly, and have a positive impact on learning and instruction.

 

Drug and Food Control in Indonesia [Raboan Discussion Forum]

Center for Bioethics and Medical Humanities (CBMH FK-KMK UGM) held Raboan Discussion Forum on Wednesday (21/12). CBMH FK-KMK UGM invited Dr. Sampurno, MBA, Apt, ex-head of Badan Pengawas Obat dan Makanan Republic Indonesia (2001-2006). Dr. Sampurno presented topic Drug and Food Control. The discussion was lead by Prof. Dr. Sismindari, SU, Apt., Professor at Faculty of Pharmacy UGM.

Drug and food control is crucial because it involves the safety of millions of human lives and the value of large commodity circulation. The monitoring system must be carried out in a systematic, strict, and comprehensive manner based on an efficient system. The purpose of the drug and food control system is to protect people’s health and safety from products that do not meet the requirements and increase national industry excellence.

Business/industry actors must be fully responsible for the quality of their products and be able to check the safety, efficacy, and quality of the products they produce and market. All production and quality control results must be recorded as important company documents. Products that must be controlled and supervised are all medicinal products, traditional medicines, food, cosmetics, and medical devices circulating in the country as well as those exported.

Recommendations for drug and food control include the development of a system-based BPOM equipped with up-to-date and sophisticated IT and AI, the development of BPOM institutions throughout Indonesia as a unified monitoring/laboratory network with an effective line of command, the development of BPOM as a learning organization with human capital as the main actors, BPOM’s ability as an initiator of cross-sectoral collaboration and synergy, and the development of leadership with a strategic vision that is broad-minded and able to mobilize public participation and awareness.

Update on Stem Cell Therapy in Indonesia [Raboan Discussion Forum]

On Wednesday (14/12), the Center for Medical Bioethics and Humanities held the Raboan Discussion Forum. The topic discussed was Update on Stem Cell Therapy in Indonesia. The speaker for this discussion was dr. Nur Azid Mahardinat and it was moderated by dr. Galuh Dyah Fatmala.

Stem cells are cells that have not properly differentiated and can multiply and differentiate into other cells that are more specific in the human body. They are essential for the development, growth, and repair of cells or tissues in the body. Stem cell technology has sparked new enthusiasm in the development of therapies for various types of diseases. However, it is important to remember that for a therapeutic technique or procedure to become a standard therapy, it must meet all scientific requirements.

Stem Cell Services in the world:

  • The policies in different countries vary.
  • This means that patients who are in a country where the use of stem cells is banned will need to go to another country that allows it.
  • For the patient’s country of origin, this results in a loss in terms of income.
  • For the destination countries of the patients, the potential for exploitation must be watched out for as a direct impact of the medical services provided.

In Indonesia, over the last decade, there has been a tremendous increase in enthusiasm for self-therapy. Some hospitals even invite experts from other countries to provide these services in Indonesia. The government, through the health courts and BPOM, has responded to this development with various regulations.

Main goals of stem cell therapy:

  1. No patient choice (no new treatment options)
  2. Rejuvenation and anti-aging (healthy patients, who do not have life-threatening diseases)

Ethical questions:

  1. What ethical considerations should be considered when applying new techniques or technologies in healthcare?

The answer: A new medical technique/technology is more likely to be adopted if it is safer, more effective, faster, cheaper, and improves cosmetic outcomes. The physician-patient relationship should prioritize the quality of care provided to patients and their families.

  1. Is it ethical to use ‘no option’ patients in therapy-based services?

The answer: There are ethical concerns regarding the inefficient allocation of medical resources, the potential for patients to experience therapy that could burden the economy or have side effects, and the possibility of patients being exploited for the benefit of certain parties.

To prevent unethical practices such as experimental procedures, considerations for clinical use and additional guidelines have been developed, including discussions on recipient selection and addressing the concerns raised in this context.

 

Humanist Doctors Views on Secularism in Indonesia [Raboan Discussion Forum]

The Center for Bioethics and Medical Humanities (CBMH FK-KMK UGM) again held the Raboan Discussion Forum on Wednesday (07/12). The weekly forum raised the topic When Secular Humanist Doctors Talk About Bioethics in Indonesia. On this occasion, the speaker was Albert Adiputra, M.Sc. Meanwhile, the moderator of the discussion was dr. Tiea Khatija.

The existence of a secular humanist minority is considered inappropriate in public discourse, so it lags in formulating policies related to bioethics in Indonesia. Albert’s qualitative research aims to explore the views of secular humanist doctors on bioethics issues as well as their positions, perceptions, and knowledge of the functions, benefits, and developments of bioethics in Indonesia. In his study, the sample consisted of 11 secular humanist doctors who were selected purposively snowball. The results show that secular humanist doctors have different positions and attitudes towards bioethical issues based on non-uniform claims within the spectrum of secularism. Although there is no consensus regarding attitudes and positions towards elective abortion and voluntary active euthanasia, respondents have a relatively consistent pattern of views regarding technology supporting the transhumanism movement. In this respect, the secular humanist doctor is not as monolithic as the public narrative suggests. The hope for medical secularism to materialize in the future is the response of secular humanist doctors to the problems of education and the medical profession that are not secular today. Thus, this study provides an overview of the views of secular humanist doctors on bioethics and its social implications for public discourse and policy in Indonesia.

Application of the Value of Altruism and Doctor’s Responsibility in Handling Patient Complaints at the Hospital [Raboan Discussion Forum]

The Center for Bioethics and Medical Humanities (CBMH FK-KMK UGM) again held the Raboan Discussion Forum on Wednesday (30/11). The weekly forum raised the topic Application of the Value of Altruism and Doctor’s Responsibility in Handling Patient Complaints at the Hospital. On this occasion, the speaker was dr. Rizka Putri Pratiwi, M.Sc. Meanwhile, the moderator of the discussion was dr. Tiea Khatija.

In her presentastion, dr Rizka explain the aims of her study is to identify the types of patient complaints and the process of handling them in the hospital, as well as evaluate the application of altruism and responsibility values in handling these complaints. The method used is qualitative research with a phenomenological approach, by collecting data through in-depth interviews with 15 doctors and several patients, as well as secondary data from Standard Operational Procedure documents. The results showed that there were four sub-themes in the types of patient complaints, namely types of complaints in three domains (clinical, management, and relationships), ways of submitting complaints, flow of complaint handling, and doctors’ perceptions of complaints as an important part of service. The complaint handling process includes identification, finding solutions, delivering solutions, patient feedback, documentation, and evaluation, and the values of altruism and responsibility have been applied. However, there are still some obstacles in the implementation of the value of responsibility that require improvement and improvement. Overall, the handling of patient complaints at the hospital has been carried out well, but still requires improvement to improve service quality.

Humanist Education [Raboan Discussion Forum]

Wednesday (23/11), the Center for Medical Bioethics and Humanities held the Raboan Discussion Forum. The topic raised was Humanist Education. The speaker for this discussion was dr. C.B. Mulyatno, Pr. and moderated by Noviyanti Fahdilla, S. Tr.Keb, MPH.

Experimental School is a school that focuses on human and experience. The core of the school built by YB Mangunwijaya is the development of the character of solidarity. The reason is because Indonesian society is plural, so it has religious riches such as respecting, celebrating, and giving meaning to life. So far, education in Indonesia has only prioritized by the value of rivalry through the ranking. That’s why, YB Mangunwijaya want to create a happy school and every student was involved in self-development.

Students were invited to make some agreement like classroom rules, so we let the children to contribute. Thus the class becomes an exploratory space. An integral aspect of the experimental school is children get the value from the activities that they do, so children can express it by understanding the meaning of sharing, empathy and friendship.

Mangunan experimental school is a school that has a basic education system by developing children’s creativity. The main goal of the experimental school is the ability to value and live life. According to YB Mangunwijaya, the meaning of school is convivium (learning community), which is a place to interact with teachers, students, parents, and the community. The experimental school didn’t use any fences because they thought that children can directly interact with the people around the school.

There are 7 basic modalities applied by experimental schools:

  1. Have good mental and spiritual character.
  2. Understanding the language so they can express themselves in a polite communication.
  3. Independent, honest, critical, and creative
  4. Able to understand and appreciate useful items in life.
  5. Like to help someone and doing good.
  6. Respect each other and work together to keep the environment in a good term.
  7. Physically and spiritually healthy

Predicting the Future of Telemedicine in Indonesia Post COVID-19 [Raboan Discussion Forum]

Wednesday (16/11) Center for Bioethics and Medical Humanities Faculty of Medicine Public Health and Nursing held a Raboan Discussion Forum. The virtual forum raised the topic Measuring the Future of Telemedicine in Indonesia Post COVID-19, presented by dr. Dony Septriana Rosady MH.Kes MBA M.AP M.Sc. Meanwhile, the moderator for the discussion was Nathan Agwin Khenda, Ftr.

Telemedicine refers to remote healthcare services provided by healthcare professionals using information and communication technology. The Ministry of Health’s regulation on Telemedicine (Permenkes 20/2019) covers teleradiology, tele-electrocardiography, tele-ultrasonography, teleclinical consultations, and other telemedicine services as per advancements in science and technology. Research development with various public-private ownership characteristics, geographic locations, and service levels is necessary to strengthen telemedicine implementation. Regulatory guidance on clinical teleconsultation, the development of online PNPK (National Standardization of Health Facility), and strengthening health information management policies, including financing and digital literacy, are also necessary. Collaboration across academic, business, community, government, and media sectors is crucial for developing clinical teleconsultation.

During the COVID-19 pandemic, clinical teleconsultation has adhered to bioethical principles and ethical guidelines set by professional organizations. Respect for patient autonomy, non-maleficence, beneficence, and justice in providing easy access to all while ensuring the provision of face-to-face services for those in need have been maintained. The practice of teleconsultation during the pandemic is in line with existing regulations and does not violate medical ethics. Post-pandemic regulation review is necessary for the sustainable implementation of clinical teleconsultation.

 

The Ethical Perspective of Medical Personnel on the Crisis of Personal Protective Equipment at the Beginning of the COVID-19 Pandemic [Raboan Discussion Forum]

Wednesday (09/11), the Center for Bioethics and Medical Humanities again held the Raboan Discussion Forum. The topic discussed at this event was the Ethical Perspective of Medical Personnel on the Crisis of Personal Protective Equipment at the Beginning of the COVID-19 Pandemic. Dr explained this topic. Paramita Sari M.Sc, Lecturer at the Faculty of Medicine, Nahdalatul Ulama University in Surabaya and also an Alumni of the UGM Bioethics Masters Study Program. Meanwhile, acting as moderator is Desy Putri Ratnasari, S.Si, M.Si.

The Covid-19 pandemic in Hubei, China, spread quickly and resulted in high morbidity and mortality rates. According to Dr. Paramita, this is a new challenge for medical personnel, especially at the forefront of health facilities. Health systems in various countries, including Indonesia, are not ready to face the Covid-19 Pandemic.

At the beginning of the spread of Covid-19, medical workers faced the problem of a shortage of logistics for personal protective equipment (PPE) even though tools such as masks, gloves, hand sanitizers, and so on are urgently needed so that health workers are not infected with Covid-19.

“Covid-19 spreads rapidly with high morbidity and mortality rates, while the readiness of personal protective equipment at the start of the pandemic was not close and is said to be in a crisis condition.” Dr. Paramita said.

Many ethical dilemmas were faced by medical personnel at that time. Medical personnel should save patients during a crisis for personal protective equipment. Limited personal protective equipment makes the risk of contracting Covid-19 even higher.

Even though the principle is that medical personnel must save themselves before helping others. Before meeting the patient, personal protective equipment is a mandatory requirement to help patients who need help and care.